Little compares with the heartbreak pediatric oncologist Jakub Tolar, M.D., Ph.D., sees working with children who have epidermolysis bullosa (EB), a usually fatal disease that can cause the skin to slough off at even the slightest touch.
And though he was part of the pioneering University of Minnesota Amplatz Children’s Hospital team offering promising but risky blood and marrow transplants aimed at curing the disease, he is now focused on finding a safer treatment alternative.
Make a gift to this novel research by December 31 and together the Epidermolysis Bullosa Medical Research Foundation and EB Research Partnership will match it dollar for dollar up to a cumulative $450,000.
So far Tolar’s efforts have found support from coast to coast—and plenty in between.
Frances Spira of Minneapolis spent a month at University of Minnesota Hospitals as a young adult and firmly believes that her doctors there saved her life. That experience has prompted her and her husband, Leonard, to contribute $50,000 to the match—as well as another $50,000 to other research efforts at the University—in memory of their beloved parents, Suzanne and Meyer Spector and Edward and Eva Spira.
The Spiras had planned to make these gifts through their estate, but their daughter encouraged them to give now and see the difference they were making.
“I thought, ‘You know, that’s right,’” Frances Spira says. “Why not give while I am alive?”
Still, there’s $83,229 left to raise. Learn more or make your gift today at z.umn.edu/ebmatch.