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After 13 years of effort by literally a cast of thousands, GINA was passed overwhelmingly by both Houses of Congress and signed into law by President Bush this spring. So, now that this policy in place, what does it do and doesn't do regarding protecting individuals from potential genetic discrimination?
In the June 19, 2008 issue of the New England Journal of Medicine, Kathy Hudson, MK Holohan and Francis Collins review GINA to succintly answer these in a short review that is freely available.
Although a landmark piece of legislation that provides much needed protection for healthy people with a genetic predisposition for disease, there are still gaps in protection. It is important for practitioners and researchers to understand GINA's strengths and weaknesses so that they can counsel their patients and research subjects with accurate and complete information about the risks and benefits of genomic medicine and/or participating in genomic research.
Below the fold is a bulleted summary from this article of what GINA addresses for practical purposes.